FDA consumer safety officer discussed the challenges of navigating policy and politics in rare diseases at a recent meeting.

SAN FRANCISCO -- As a young pediatrician in San Francisco, Priscilla Chan said she would feel embarrassed when she would walk into a young patient's room and not know anything about the rare disease ...

This summer in Chicago, the Field Museum is turning up the heat - and the chills - with its new exhibit, featuring a rare specimen not seen anywhere else in U.S. The "Reptiles Alive" exhibit opens ...

Cure Rare Disease (CRD), a nonprofit biotechnology organization developing genetic therapies for ultra-rare diseases, today announced the successful completion of a pre-Investigational New Drug ...

MCPHERSON, Kan. (KSNW) — McPherson College is hosting the 25th Annual C.A.R.S. Club Motoring Festival. This year’s festival will feature over 450 vehicles from across the country, including some ...