Columnist Connie Chandler explains how letting go of her "ideal" checklist helped her build a diverse and reliable team of ...

Zolgensma is approved for any type of SMA related to SMN1 mutations, but shouldn't be administered to anyone with an active ...

In honor of SMA Awareness Month, columnist Halsey Blocher is remembering loved ones by trying to live in the same way they did.

Impressed by the accurate portrayal of emergency rooms on "The Pitt," columnist Sherry Toh hopes to see her own rare disease ...

The nerve cell-targeting EXG001-307 seems to have a better safety profile than Zolgensma, showing fewer adverse effects on ...

In an exclusive Q&A, a Biogen exec discussed the developer's quest to 'rapidly' bring its experimental SMA therapy salanersen ...

Columnist Helen Baldwin observes SMA Awareness Month by recalling her son's short life with the disease, as well as all she ...

SMA Awareness Month is a time to shine a light on the everyday challenges and celebrations with this disease, writes ...

Columnist Ari Anderson still needs to expand his team of home-care nurses, but the ones he has always go the extra mile.

Columnist Connie Chandler says that people in a wheelchair like to dance like everyone else and deserve some technical ...

For Cure SMA, August is the time to shine a spotlight on the SMA community and to help raise awareness about the rare genetic condition.

From accessibility to maps to food and more, Allie, Jose, Shaniqua, Andrew, and Ryan share tips for visiting theme parks with SMA.